Resources
Support Resources
It is Scleroderma Atlantic’s objective to provide up to date and relevant information and helpful resources for the scleroderma community.
These resources are of primary interest to those living with scleroderma, caregivers, family members, medical professionals, healthcare students, and those with an interest in scleroderma.
This page features links to a variety of external resources as well as Scleroderma Atlantic resources.
The information and resources included on this page do not constitute medical advice. Always discuss any changes to your treatments or medications with your doctor first.
Tya’s Story
Feb 2, 2023 My name is Tya Broussard. I live in Nova Scotia. My journey with health struggles started back in 2009 when I was
Rylan’s Story
June 20th, 2022 My name is Rylan and I am 15 years old. When I was 7, I was diagnosed with two incurable rare diseases:
Kevin’s Story
April 18, 2022 My name is Kevin Collins and I am from Hare Bay, Newfoundland. I had been experiencing symptoms since the fall of 2016
The David Shea Memorial Patient Support Fund
Scleroderma treatments can often lead to difficult, unexpected expenses for items such as medications, treatments, and travel to appointments. It is recognized that expenses such as these can place a significant burden on scleroderma patients to the point where they opt out of recommended treatments.
To assist with these financial hardships Scleroderma Atlantic has established a patient support program in memory of David Shea.This fund provides financial assistance to individuals living with scleroderma who incur expenses related to the treatment of scleroderma and/or its related symptoms.
Webinar Series & Videos
Living with Scleroderma: The Caregiver Experience in 2 Minutes
This video delves into the challenges, emotions, and invaluable lessons learned while caring for someone with scleroderma. Tailored for both caregivers seeking solidarity and medical
Understanding Scleroderma Morphea in Just 60 Seconds
Scleroderma Morphea in 1 Minute: An Essential Overview Delve into a concise, yet comprehensive introduction to Scleroderma Morphea, a complex skin disorder with global implications.
The Spoon Theory & How it Helps Explain Energy
Life with scleroderma can be exhausting. It can be difficult to understand how energy is affected by the disease. The Spoon Theory was originally created
Research Highlights
Patient Support Resources
Scleroderma Atlantic’s 2021 AGM
Thank you to all those who were able to attend the 2021 AGM. We were pleased to recap all that has been accomplished in the
Spin-Share Platform: How To Register
Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login
Educational Handbook
This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma?