Resources

Support Resources

It is Scleroderma Atlantic’s objective to provide up to date and relevant information and helpful resources for the scleroderma community. 

These resources are of primary interest to those living with scleroderma, caregivers, family members, medical professionals, healthcare students, and those with an interest in scleroderma. 

This page features links to a variety of external resources as well as Scleroderma Atlantic resources. 

The information and resources included on this page do not constitute medical advice. Always discuss any changes to your treatments or medications with your doctor first.

Rylan’s Story

June 20th, 2022 My name is Rylan and I am 15 years old. When I was 7, I was diagnosed with two incurable rare diseases:

Read More »

Kevin’s Story

April 18, 2022 My name is Kevin Collins and I am from Hare Bay, Newfoundland. I had been experiencing symptoms since the fall of 2016

Read More »

Katie’s Story

June 10, 2021 “In 2017, at the end of her second year of university, Katie got sick, like, really sick. After countless doctors appointments and

Read More »

The David Shea Memorial Patient Support Fund

Scleroderma treatments can often lead to difficult, unexpected expenses for items such as medications, treatments, and travel to appointments. It is recognized that expenses such as these can place a significant burden on scleroderma patients to the point where they opt out of recommended treatments.

To assist with these financial hardships Scleroderma Atlantic has established a patient support program in memory of David Shea.This fund provides financial assistance to individuals living with scleroderma who incur expenses related to the treatment of scleroderma and/or its related symptoms.

Webinar Series & Videos

Research Highlights

Spin-Share Platform: How To Register

Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login

Read More »

Patient Support Resources

Spin-Share Platform: How To Register

Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login

Read More »

Educational Handbook

This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma?

Read More »

Thank you for your interest in donating to Scleroderma Atlantic. With donations like yours, we're able to make a difference in the community.

Our donations are currently processed through Scleroderma Canada. You will be redirected to their page by clicking below. 

Please be sure to select #4 on the drop down menu for general donations. Please select #6 on the dropdown menu for Atlantic memorial donations to ensure the funds are allocated to the Atlantic region!