The Spoon Theory & How it Helps Explain Energy

Life with scleroderma can be exhausting. It can be difficult to understand how energy is affected by the disease. The Spoon Theory was originally created by Lupus patient advocate Christine Miserandino to better understand energy levels in those living with chronic illness. The concept can easily be applied to scleroderma, as we see in the …

The Spoon Theory & How it Helps Explain Energy Read More »

Spin-Share Platform: How To Register

Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login or register at: To read the guide in English press here. To read the guide in French press here.

Educational Handbook

This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma? Managing Scleroderma Managing Fatigue Eating Well Dental Care in Scleroderma GERD: Gastrointestinal Reflux Disease What is Pulmonary Hypertension Raynaud’s Phenomenon Support Groups Preparing for Medical Appointments This pamphlet is meant …

Educational Handbook Read More »