Life with scleroderma can be exhausting. It can be difficult to understand how energy is affected by the disease. The Spoon Theory was originally created by Lupus patient advocate Christine Miserandino to better understand energy levels in those living with chronic illness. The concept can easily be applied to scleroderma, as we see in the …
Are you wondering if you might have limited scleroderma? Watch our short-clip video about the symptoms.
Special thanks to our incredible participants, sponsors, volunteers and more. We appreciate you. With your support, we were able to make this year’s events a wonderful success.
Thank you to all those who were able to attend the 2021 AGM. We were pleased to recap all that has been accomplished in the past year, and are looking forward to what the year ahead has in store. If you would like to view the slides from the AGM, click here. If you would …
Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login or register at: www.tools.spinsclero.com To read the guide in English press here. To read the guide in French press here.
This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma? Managing Scleroderma Managing Fatigue Eating Well Dental Care in Scleroderma GERD: Gastrointestinal Reflux Disease What is Pulmonary Hypertension Raynaud’s Phenomenon Support Groups Preparing for Medical Appointments This pamphlet is meant …
