General

The Spoon Theory & How it Helps Explain Energy

Life with scleroderma can be exhausting. It can be difficult to understand how energy is affected by the disease. The Spoon Theory was originally created by Lupus patient advocate Christine Miserandino to better understand energy levels in those living with chronic illness. The concept can easily be applied to scleroderma, as we see in the […]

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Educational Handbook

This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma? Managing Scleroderma Managing Fatigue Eating Well Dental Care in Scleroderma GERD: Gastrointestinal Reflux Disease What is Pulmonary Hypertension Raynaud’s Phenomenon Support Groups Preparing for Medical Appointments This pamphlet is meant

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