This video delves into the challenges, emotions, and invaluable lessons learned while caring for someone with scleroderma. Tailored for both caregivers seeking solidarity and medical professionals aiming to understand the holistic impact of scleroderma, this quick video offers a unique perspective on the patient-caregiver dynamic.
Living with Scleroderma: The Caregiver Experience in 2 Minutes Read More »
Scleroderma Morphea in 1 Minute: An Essential Overview Delve into a concise, yet comprehensive introduction to Scleroderma Morphea, a complex skin disorder with global implications. This video serves as an invaluable resource for individuals living with scleroderma, medical students, and professionals seeking a foundational understanding of the condition.
Understanding Scleroderma Morphea in Just 60 Seconds Read More »
Guest speaker Eric Ross from Attune Counselling Therapy and Music Psychotherapy helps us discover different ways to reduce the effects of stress. To view Eric’s slides click here: bit.ly/3ZX3mHl
Stress Less: Reducing The Effects of Stress Read More »
Special thanks to our incredible participants, sponsors, volunteers and more. We appreciate you. With your support, we were able to make this year’s events a wonderful success.
Make a Move For Scleroderma 2022 Read More »
June 20th, 2022 My name is Rylan and I am 15 years old. When I was 7, I was diagnosed with two incurable rare diseases: scleroderma en coupe de sabre and PRS. There are two main types of Scleroderma, localized and systemic. I have the localized one. My scleroderma runs down my forehead and around
April 18, 2022 My name is Kevin Collins and I am from Hare Bay, Newfoundland. I had been experiencing symptoms since the fall of 2016 and was finally diagnosed with scleroderma in July of 2019. I was referred to a rheumatologist and got in to see her right away. She sent me for more blood
June 10, 2021 “In 2017, at the end of her second year of university, Katie got sick, like, really sick. After countless doctors appointments and many medical tests she was diagnosed with Scleroderma. Our determined kid worked through the constant pain, inflammation and side effects from medication, and was able to graduate from university on
Jan 3, 2022 I am Michelle Richard. I have been living with scleroderma for the past 21 years. In the beginning, my symptoms were pretty generic; fatigue, joint pain, and my blood work kept coming back normal. My family doctor suggested that I continue to monitor my symptoms and return if any new symptoms arose.
April 2, 2022 My name is Kim Fortin and I am from Aylesford, Nova Scotia. This has been my personal experience living with scleroderma. My symptoms first appeared in 2002 after a tragic incident in my life. It took 2 years to get my diagnosis and this was only after I pushed to see an
Join Dr.Kate MacAdam as she shares an informative presentation on how alternative health therapies like chiropractic care, massage therapy, and reflexology can help you manage pain and discomfort from scleroderma. To view Kate’s slides, click here: https://bit.ly/3pQ6q7R
Poke, Prod, or Rub: What Could Work For You? Read More »
