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Getting Active: Where to Start and How to Keep Going

Join Scleroderma Atlantic and Kelsey Ellis, BSc for Getting Active – Where to Start and How to Keep Going. All movement is important to maintain health and well-being. The focus of this presentation is to provide an overview of strategies to move more, maintain movement, and to go through some examples of at-home exercises. For …

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Gastro Challenges with Scleroderma: A Gut Reaction Top to Bottom

Join Scleroderma Atlantic and Dr. Janet Pope for Gastro Challenges with Scleroderma: A Gut Reaction – Top to Bottom. Dr. Pope will be sharing how scleroderma affects the different areas of the digestive system, the resulting challenges, possible treatments or remedies, and will answer audience questions. To view Dr. Pope’s Slides, visit our website: https://www.sclerodermaatlantic.ca/wp…​ …

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Scarring on the Lungs, and Pressure in My Heart

Join Scleroderma Atlantic and guest speaker/specialist Dr. Vidyasankar for a discussion on the basic principles of interstitial lung disease (ILD) and pulmonary arterial hypertension (PAH). Dr. Vidyasankar will review treatment options, discuss the relevance for patients living with systemic sclerosis, and answer audience questions. The Scleroderma Atlantic webinar series is supported by the Government of …

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Establishing the Individual Immune Identity Card of Scleroderma Patients

At the request of several provincial scleroderma (Scl) associations, I am pleased to provide an overview of recent research carried out under the University of Montreal Scleroderma Research Chair. For the past several years, an advanced program of translational research on Scl is in progress in Montreal at the Research Center of the Centre Hospitalier …

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Spin-Share Platform: How To Register

Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login or register at: www.tools.spinsclero.com To read the guide in English press here. To read the guide in French press here.

Educational Handbook

This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma? Managing Scleroderma Managing Fatigue Eating Well Dental Care in Scleroderma GERD: Gastrointestinal Reflux Disease What is Pulmonary Hypertension Raynaud’s Phenomenon Support Groups Preparing for Medical Appointments This pamphlet is meant …

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Getting a Grip on Scleroderma Hands

Scleroderma Atlantic welcomes Jan Nitti from the American Raynaud’s Organization and Linda Kwakkenbos from SPIN to December’s Zoom Webinar: Getting a Grip on Scleroderma Hands. Jan shares facts on Raynaud’s, treatments and medications available, as well as how to advocate for yourself during a hospital visit. She will also discuss digital ulcers, their causes, and …

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