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Ask A Dietitian: Eating Well With Scleroderma

Many thanks to Cassandra Burton for sharing dietary information and advice for those living with scleroderma, and to everyone who attended. You can view Cassandra’s Slides here. Additional links shared in the webinar: International Dysphagia Diet Standardization Initiative: www.iddsi.orgAbout The Mediterranean Diet: www.oldwayspt.orgMediterranean Diet Food Pyramid: https://oldwayspt.org/system/files/atoms/files/MedDietPyramid_flyer%5B1%5D_0.pdfLow Fodmap Resource, Monash University: https://www.monashfodmap.com/

Keeping Warm With Raynaud’s: Impactful Innovations & More

95% of those living with scleroderma have experienced Raynaud’s phenomenon. October is Raynaud’s Awareness Month, and we’re spending a full session exploring the disease, symptoms, helpful products, and incredible innovations to help with the daily challenges of Raynaud’s. Join Lynn Wundermann, Founder and Chairman of the Raynaud’s Association and Adrien Beyk, Founder & CEO of …

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Treating Mild ILD Research From Dr. Hoa

Systemic sclerosis (SSc) is a rare autoimmune disease characterized by various degrees of skin fibrosis and internal organ involvement. Interstitial lung disease (ILD), or pulmonary fibrosis, is a common complication of SSc, affecting up to 50% of patients. Immunosuppressive drugs are currently used to treat SSc-ILD, particularly in patients with pulmonary symptoms (e.g. shortness of …

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Getting Active: Where to Start and How to Keep Going

Join Scleroderma Atlantic and Kelsey Ellis, BSc for Getting Active – Where to Start and How to Keep Going. All movement is important to maintain health and well-being. The focus of this presentation is to provide an overview of strategies to move more, maintain movement, and to go through some examples of at-home exercises. For …

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Gastro Challenges with Scleroderma: A Gut Reaction Top to Bottom

Join Scleroderma Atlantic and Dr. Janet Pope for Gastro Challenges with Scleroderma: A Gut Reaction – Top to Bottom. Dr. Pope will be sharing how scleroderma affects the different areas of the digestive system, the resulting challenges, possible treatments or remedies, and will answer audience questions. To view Dr. Pope’s Slides, visit our website: https://www.sclerodermaatlantic.ca/wp…​ …

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Scarring on the Lungs, and Pressure in My Heart

Join Scleroderma Atlantic and guest speaker/specialist Dr. Vidyasankar for a discussion on the basic principles of interstitial lung disease (ILD) and pulmonary arterial hypertension (PAH). Dr. Vidyasankar will review treatment options, discuss the relevance for patients living with systemic sclerosis, and answer audience questions. The Scleroderma Atlantic webinar series is supported by the Government of …

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Establishing the Individual Immune Identity Card of Scleroderma Patients

At the request of several provincial scleroderma (Scl) associations, I am pleased to provide an overview of recent research carried out under the University of Montreal Scleroderma Research Chair. For the past several years, an advanced program of translational research on Scl is in progress in Montreal at the Research Center of the Centre Hospitalier …

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Educational Handbook

This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma? Managing Scleroderma Managing Fatigue Eating Well Dental Care in Scleroderma GERD: Gastrointestinal Reflux Disease What is Pulmonary Hypertension Raynaud’s Phenomenon Support Groups Preparing for Medical Appointments This pamphlet is meant …

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