June 20th, 2022 My name is Rylan and I am 15 years old. When I was 7, I was diagnosed with two incurable rare diseases: scleroderma en coupe de sabre and PRS. There are two main types of Scleroderma, localized and systemic. I have the localized one. My scleroderma runs down my forehead and around …
April 18, 2022 My name is Kevin Collins and I am from Hare Bay, Newfoundland. I had been experiencing symptoms since the fall of 2016 and was finally diagnosed with scleroderma in July of 2019. I was referred to a rheumatologist and got in to see her right away. She sent me for more blood …
June 10, 2021 “In 2017, at the end of her second year of university, Katie got sick, like, really sick. After countless doctors appointments and many medical tests she was diagnosed with Scleroderma. Our determined kid worked through the constant pain, inflammation and side effects from medication, and was able to graduate from university on …
Jan 3, 2022 I am Michelle Richard. I have been living with scleroderma for the past 21 years. In the beginning, my symptoms were pretty generic; fatigue, joint pain, and my blood work kept coming back normal. My family doctor suggested that I continue to monitor my symptoms and return if any new symptoms arose. …
April 2, 2022 My name is Kim Fortin and I am from Aylesford, Nova Scotia. This has been my personal experience living with scleroderma. My symptoms first appeared in 2002 after a tragic incident in my life. It took 2 years to get my diagnosis and this was only after I pushed to see an …
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