Scleroderma affects everyone differently, as does how each of us manages our disease and responds to treatments. For this reason, it is important to share many stories. We need to know we are not alone. In this webinar, you will hear from our guest speakers about their personal journeys with scleroderma. They will be joining […]
Life with Scleroderma – Personal Stories Read More »
At the request of several provincial scleroderma (Scl) associations, I am pleased to provide an overview of recent research carried out under the University of Montreal Scleroderma Research Chair. For the past several years, an advanced program of translational research on Scl is in progress in Montreal at the Research Center of the Centre Hospitalier
Establishing the Individual Immune Identity Card of Scleroderma Patients Read More »
Supporting people living with scleroderma from around the world by providing rehabilitation and psychosocial online programs free-of-charge. To have access to Spin Online toolkits, login or register at: www.tools.spinsclero.com To read the guide in English press here. To read the guide in French press here.
Spin-Share Platform: How To Register Read More »
This booklet contains key information, tips and guidelines to help you better understand scleroderma and its effects. It covers the following topics: What is Scleroderma? Managing Scleroderma Managing Fatigue Eating Well Dental Care in Scleroderma GERD: Gastrointestinal Reflux Disease What is Pulmonary Hypertension Raynaud’s Phenomenon Support Groups Preparing for Medical Appointments This pamphlet is meant
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Scleroderma Atlantic welcomes Jan Nitti from the American Raynaud’s Organization and Linda Kwakkenbos from SPIN to December’s Zoom Webinar: Getting a Grip on Scleroderma Hands. Jan shares facts on Raynaud’s, treatments and medications available, as well as how to advocate for yourself during a hospital visit. She will also discuss digital ulcers, their causes, and
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Join hosts Erika and Sara from The Pilates Barre Halifax along with special guest, Jessie Ferguson, who will discuss how meditation and mindfulness have helped in her journey living with Scleroderma. Wondering if meditation and mindfulness can help you too? Erika and Sara will take you through the basics to get started with your own
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Scleroderma affects everyone differently, as does how each of us manages our disease and responds to treatments. For this reason, it is important to share many stories. We need to know we are not alone. On Sunday, October 25th, 2020 Scleroderma Atlantic held a webinar; Life with Scleroderma. Thank you to panelists Kat Briand, Jessie
Life with Scleroderma: Personal Stories Read More »
